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03-10-2018

Product Code:- Research-PH189

                                                                       Chapter 1

The Problem

 Introduction

            A child is the most precious gift that a parent can have. A parent tries everything in order to provide the needs of their child to grow as an independent and responsible individual. But  what would be the reaction of a parent, especially a mother who nurtures a precious child in her womb for nine months only to find later birth that the baby has a disability? What could be the possible struggles of a mother as a parent of the child with Down syndrome? Will she be able to cope-up with the situation of her child?

          Down syndrome is by far the most common and best known chromosomal disorder in humans and the most common cause of intellectual disability ( Chen 2015), the estimated incidence of Down Syndrome is between 1 in 1,000 to 1 in 1,100 live births worldwide ((World health Organization, 2015). One in every 800 babies born has Down syndrome or around 1, 875 cases a year in the Philippines in a population of 1.5-million live births. This was revealed by the Down Syndrome Association of the Philippines Incorporated saying that more than 100,000 families in the country are living with a person with Down syndrome (Villamente, 2014). In Special Education School (SPED) La-Trinidad Benguet, they have a total number of 11 Down syndrome students and SPED Baguio only have 4 Down syndrome students.

        According to the research done by Shobana and Saravanan (2014), parental attitudes and psychological problems vary among mothers of children with different types of developmental disability. This research study would be then conceptualized in order to come across on the diverse endurances of mother in taking a child with Down syndrome specifically on the following perspectives: determine the parenting struggles of a mother, understand their complex real life situations and pressured experiences, and identity coping strategies.

       This research will be conducted because the researcher have encountered and with personal experience to a mother with Down syndrome child. One mother who has a Down syndrome child said that taking care of a child Down syndrome is twice more difficult than having a normal one; you will never know what the future has, if who will take good care of her child when she’s gone, or will her child be able to play with other normal kids. So the researcher would like to explore what are the difficulties of a mother as a parent to her child with Down syndrome.

       The researcher has also experienced to look after a care of a child with Down syndrome during clinical exposure. The mother asked her to look out for the child for a while since she has to buy something. During intervention, it was very difficult to get the child’s vital signs because he doesn’t cooperate, so 2 student nurses were asked to distract the attention of the child while the other student nurse will take the vital signs. During this interaction, a question came across the child’s behavior and special needs?  How does she feel while seeing her child having difficulties or suffering from a disease?

       Unveiling evidences mean that revealing the untold story of a person’s experience in a certain phenomenon. According to Merriam-Webster dictionary (2015) reminiscence is a story that someone shares about the past. The focus of the study is a matter for the reason being that mothers are more attached to their children and are more emotionally expressive compared to men. The researcher also chose Down syndrome among the other disorders because it is one of the most common disorders.

       The focus of the study is about a mother for the reason being that mothers are more attached to their children and are more emotionally expressive compared to fathers.

Statement of the problem:

       This study aims to explore and understand the struggles of mothers who have a Down syndrome child.

       Specifically, this study aims to answer the following question:

  1. What are the different struggles of a mother while taking care of her Down syndrome child?
  2. What are the coping mechanisms of the mother to cope-up with the situation of her child?

 

 

Chapter 2

Design and Methods

Scope and Delimitation of the Study

      This study will be conducted at the participant’s residence house, for a series of interview will be scheduled since it is more private and convenient for the mother.

Theoretical Framework

       A case study is an empirical inquiry that investigates a contemporary phenomenon within its real – life context, especially when the boundaries between phenomenon and context are not clearly evident (Yin, 2009). Also, as cited by Yin according to (Schram, 1971) the essence of case study, the central tendency among all types of case study. Is that it tries to illuminate a decision or set of decisions; why they were taken; how were implemented; and with what results.

           A single case study approach will be used in this study. According to (Yin, 2004) a single case study represents a critical case in testing a well formulated theory, longitudinal case like how certain conditions change over time, and represents an extreme case or a unique circumstance. Since the focus of the study is to explore the struggles and coping mechanism of a mother with Down syndrome child, single case study will be utilized over multiple case studies because multiple case studies is more on collective case designs; it alludes to a case study research in which particular instrumental bounded cases are chosen to expand more in-depth understanding of the phenomena; and it is more on categorizing, collection of information, and comparing the differences and similarities of more than 2 respondents. According to (Yin 2004) when external conditions are not thought to produce much variance in the phenomenon being studied, a smaller number of theoretical replication is needed.

       However, the limitation in using this design been matter to a vigorous criticism, the most common of which concern the interrelated issues of rigor, the subjectivity of the research and external validity.

Conceptual Framework

       The participant in this research study would be a mother with Down syndrome of two children. One child has been diagnosed with Down syndrome by a pediatrician in the early stage of life. This child with Down syndrome is currently enrolled in special education school for observation of improvements in terms of cognitive, psychomotor and affective skills.

Operational Definition of Terms

       For a better understanding of this study, the following terms are defined:

          Down Syndrome. Is a genetic condition that occurs when an individual has an extra

          Copy of chromosomal 21. It is the most common genetic cause of mild to moderate

          intellectual disability.

          Unveiling evidence. It means revealing the untold story of a person’s experience in a

          Certain phenomenon.

Assumptions

         The participant mother have a sincere interest in participating in the research procedure. The participant will answer the interview questions in an honest and candid manner.

Hypothesis

         There are different parenting struggle of a mother with Down syndrome child such as physical, social, emotional and financial struggle. Although despite the vigorous struggles encountering along the way, the mother still maintains her positive view of life in order to win over the problems and find its solution.

Methodology

         The researcher will used possible resources of evidences such as observation, and in-depth interview.

         According to Yin (2009), possible sources of evidence for this case analysis includes documents, archival records, interviews, and direct observation.

Research Design

         This study will employ the descriptive method of research which is to write a qualitative dissertation using a case study design.

Data Gathering Instruments

        Conducting a series of interview, using an audio recorder and direct observation to the participant.

Data Gathering Procedures

         In the conduct of this study, the researcher will prepared a letter of request that would be addressed to the School Division Superintendent of Benguet to allow the researcher to scout a mother who has a Down syndrome child that is currently enrolled at Special Education Center at Wangal, La-Trinidad, Benguet and allow the researcher to conduct the research inside the campus. If the letter would be approved by the School Superintendent of Benguet Division, the researcher will present it to the OIC-Principal of SPED Center, Wangal La-Trinidad, Benguet.

Data Presentation and Analysis Procedure

The research will be analyzed based on the data that would be gathering from the mother, single case study method will be used. The researcher will apply an interpretative approach by displaying the data or the story that is excerpts from interviews. The data that would be collected from the interviews should be well summarized and fully transcribed.

 

 

Download Questions

A child is the most precious gift that a parent can have. A parent tries everything in order to provide the needs of their child to grow as an independent and responsible individual. But what would be the reaction of a parent, especially a mother who nurtures a precious child in her womb for nine months only to find later birth that the baby has a disability? What could be the possible struggles of a mother as a parent of the child with Down syndrome? Will she be able to cope-up with the situation of her child?

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